I think one other challenge that young people with chronic illness face is that during the teen years, part of the process of becoming an adult is drawing away from one’s parents and becoming increasingly independent. That’s hard to do when you’re too ill to care for yourself and your parents are your caregivers. It makes the already difficult process of growing up that much harder.

Loss of independence is difficult for chronically ill people of any age, but with young people, it can interfere with their developing sense of who they are as individuals.